Thursday, August 23, 2018

Update

We have heard from the doctor and we are in a tough situation.  The good news is that there is not enough disease to really biopsy and get tissue samples.  The bad news is that the majority of clinical trials require tissue samples to qualify.  There are a couple of options:

1. Wait to see if the disease continues to get worse or until we can get a tissue sample.
2. Start a regimen of dual immunotherapy which has a very high toxicity rate and could effect other parts of the body and make me feel crappy.
3. Start chemo which doesn't really help treat melanoma that well.

We are going to do another CT scan next week and see if the lesions have grown to the point we might be able to get some tissue from them.  If they haven't (which is a good thing) we will have to make a decision then.

While I am typing this, I got a phone call from another clinical trial coordinator that is working with a targeted chemo drug called HuMax-AXL-ADC.  This trial does not require a fresh biopsy so I might be able to qualify for this.  They have tried it on 15 patients with varying responses.  For more info you can follow this link.   https://clinicaltrials.gov/ct2/show/NCT02988817

I will keep you updated on whats next, CT scan on August 28th and visit with the doctor on August 30th.

#cancersucks #fightlikehell

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