Blessings

Got back from another visit this weekend.  The blood work was okay except my uric acid levels are on the higher end.  Doctor wanted to get them down so he prescribed me some medicine to help.  Really the first prescription I have had to take and it irritates me a little bit.  I am stronger than that and shouldn't have to take these things, but doctor's orders so I do what he says.  The appointments are long and  could be a lot shorter.  The trial manager is such a disorganized mess.  She completely forgot that I was coming and didn't have anything ready.  We were there from 9:00 until 5:00 pm.

During the injection the radiologist looked at the 2 lesions.  The one they have been injecting hasn't been changing much which is good.  The one they haven't been injecting had been growing.  I guess the clinical trial protocol allowed them to inject any of them so they decided to inject the one that had been growing this time.  Hopefully it does down or disappears all together.  That night we went and saw Bohemian Rhapsody.  I thought it was well done and a good movie.  I always liked Queens music.

You know that saying when it rains it pours?  That's what it has felt like this last little while.  If it isn't one thing, it is another.  Fortunately we have been blessed and been smart over the last couple of years to be able to handle some of these things that have been thrown our way.  It isn't without a little help though.

Special shootout to those who have been so extremely generous in their help for me and my family.  There are many of you but especially Mark Novakovich and the Control 4 team as well as my grandma and grandpa Spilker, my parent's and my in-laws.  You have no idea how the things you do affect the lives of others and their situations.  Prayers get answers through you.

This week I found a non profit that actually use corporate Jets to help get cancer patients to their appointments.  I have reached out to them and they think that I would be a pretty good fit.  We are looking into it and going to see if that would help at all.  The nice thing is that they would take my wife too.  That is really the only thing that is costing us much.

Just found at as well that we are still 3 weeks from getting our first reimbursement from USC.  That will be nice to finally have that money coming back.  Started this trial the beginning of September and it is now just coming back.  Have probably taken 7 trips out to LA in the past month and a half.  Crazy how fast it goes.

#cancersucks #fightlikehell