I hate starting off with some bad thoughts but man last week was rough. This will probably be too much information but it seems appropriate to share. I started getting a rash on November 16th. That rash escalated into a full body rash that turned me red from head to toe and pretty itchy on top of it. On November 17th I started feeling like I had the flu. Chills followed by hot flashes headaches and fevers. This lasted for probably a week. I didn't make it to work the week of thanksgiving because of this. I talked to the doctor and he gave me some steroids for the rash and felt that those were some of the side effects of the treatments. On thanksgiving I was fortunate to receive a priesthood blessing (blessing of healing in my faith). That night I felt a distinct difference and started to feel much better. Now I feel pretty good and seem to be back to normal just in time for another treatment.
We have really been blessed by people through our trials. Some of you know that a month ago our Yukon's engine broke. We had no choice but to replace it. Obviously this repair was not cheap. Jen and I have been smart with money and have some savings built up. We would have been able to use that savings but it would have put a dent in it. My dad's boss caught wind of this trial that we were fighting through and he offered to take care of the repair for us allowing us to keep our savings built up. Really is a huge blessing for us. There have been so many others that have done great things for us, it is hard to mention them all. We are still plugging along and doing what we can to get better and return to some sort of normalcy. We love you all and thank you for the prayers and support. I am confident that they are working and we are in the road to bring cancer free.
#cancersucks #fightlikehell
Thursday, November 29, 2018
Tuesday, November 13, 2018
Blessings
Got back from another visit this weekend. The blood work was okay except my uric acid levels are on the higher end. Doctor wanted to get them down so he prescribed me some medicine to help. Really the first prescription I have had to take and it irritates me a little bit. I am stronger than that and shouldn't have to take these things, but doctor's orders so I do what he says. The appointments are long and could be a lot shorter. The trial manager is such a disorganized mess. She completely forgot that I was coming and didn't have anything ready. We were there from 9:00 until 5:00 pm.
During the injection the radiologist looked at the 2 lesions. The one they have been injecting hasn't been changing much which is good. The one they haven't been injecting had been growing. I guess the clinical trial protocol allowed them to inject any of them so they decided to inject the one that had been growing this time. Hopefully it does down or disappears all together. That night we went and saw Bohemian Rhapsody. I thought it was well done and a good movie. I always liked Queens music.
You know that saying when it rains it pours? That's what it has felt like this last little while. If it isn't one thing, it is another. Fortunately we have been blessed and been smart over the last couple of years to be able to handle some of these things that have been thrown our way. It isn't without a little help though.
Special shootout to those who have been so extremely generous in their help for me and my family. There are many of you but especially Mark Novakovich and the Control 4 team as well as my grandma and grandpa Spilker, my parent's and my in-laws. You have no idea how the things you do affect the lives of others and their situations. Prayers get answers through you.
This week I found a non profit that actually use corporate Jets to help get cancer patients to their appointments. I have reached out to them and they think that I would be a pretty good fit. We are looking into it and going to see if that would help at all. The nice thing is that they would take my wife too. That is really the only thing that is costing us much.
Just found at as well that we are still 3 weeks from getting our first reimbursement from USC. That will be nice to finally have that money coming back. Started this trial the beginning of September and it is now just coming back. Have probably taken 7 trips out to LA in the past month and a half. Crazy how fast it goes.
#cancersucks #fightlikehell
During the injection the radiologist looked at the 2 lesions. The one they have been injecting hasn't been changing much which is good. The one they haven't been injecting had been growing. I guess the clinical trial protocol allowed them to inject any of them so they decided to inject the one that had been growing this time. Hopefully it does down or disappears all together. That night we went and saw Bohemian Rhapsody. I thought it was well done and a good movie. I always liked Queens music.
You know that saying when it rains it pours? That's what it has felt like this last little while. If it isn't one thing, it is another. Fortunately we have been blessed and been smart over the last couple of years to be able to handle some of these things that have been thrown our way. It isn't without a little help though.
Special shootout to those who have been so extremely generous in their help for me and my family. There are many of you but especially Mark Novakovich and the Control 4 team as well as my grandma and grandpa Spilker, my parent's and my in-laws. You have no idea how the things you do affect the lives of others and their situations. Prayers get answers through you.
This week I found a non profit that actually use corporate Jets to help get cancer patients to their appointments. I have reached out to them and they think that I would be a pretty good fit. We are looking into it and going to see if that would help at all. The nice thing is that they would take my wife too. That is really the only thing that is costing us much.
Just found at as well that we are still 3 weeks from getting our first reimbursement from USC. That will be nice to finally have that money coming back. Started this trial the beginning of September and it is now just coming back. Have probably taken 7 trips out to LA in the past month and a half. Crazy how fast it goes.
#cancersucks #fightlikehell
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