Wednesday, October 21, 2020

Roller Coaster Ride

 Well I hadn’t been feeling awesome over the last little while.  Upset stomachs, some pain and fatigue.  My blood work hasn’t looked the greatest recently either.  So obviously there was some concern with what was going on inside my body.  

I had some scans on Monday morning and didn’t have a follow up appointment scheduled to review them any time soon.  The doctors assistant called this morning and was really wanting to me to come in and meet with the doctor today.  Obviously we made it work but it threw up all kinds of alarms that things were probably not looking great and gave us some cause for alarm.  

When we meet with the doctor it started kind of how we expected.  He said we are seeing enough progression in the lung and lymph node that we need to move to Chemo drugs (it will probably come to this eventually anyways but still would rather not do it).  He also said there was a blood clot in my liver from the y90 treatments that we needed to take care off with blood thinners.  As we kept talking he pulled up the scans.  I don’t care to look at the scans because I really can’t tell what I am looking at.  As he was going through them he kind of went quite for a couple of minutes and kept looking at the scans.  When he was done he said that he really didn’t like it when radiologists talked badly about his patients.  He went into more detail that the progression that he saw was no where near what was described in the radiologists notes.  After that he said that what he saw doesn’t warrant going on chemo yet.  Huge change from the beginning of my appointment.  Not the discussion turned to the blood thinner which I have to inject myself twice a day.  So exciting for me right.  He also said we would keep trying the Pembro until the next scans.  The hope is that the blood clot in the liver has caused my blood work to be kind of messed up and that the blood thinner will help to solve that problem over the next little while (just wish me luck having to stab myself).

So the roller coaster came from not feeling great over the last little while to the urgency of the phone call and appointment with the doctor to not really changing anything we are doing which was kind of a relief.  

Now into life, we are busy with Pickleball, soccer and baseball.  It is hunting season so we are trying to find time to get into the mountains as well. Kids are enjoying school for the most part and doing pretty well too.  No vacations going on or planned right now though I wish we could go somewhere to get away.  Just doesn’t seem to be in the cars right now.

We did take a drive up to Bear Lake one day, did a hike in the Uintahs and as you can see lots of Pickleball, hunting and fishing.

#cancersucks

#fightlikehell